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31 October 2024

NEW Horizon Magazine article

Researchers and patients join forces to battle rare diseases

ProDGNE is happy to share the latest article from Horizon Magazine where Michela Onali was interviewed to discuss her involvement in advocacy for GNE Myopathy, the European fight against rare diseases, and how thanks to patient leadership and EU funding from the European Joint Programme on Rare Diseases (EJP RD) ProDGNE was made possible. 

In this article Daria Julkowska, EJP RD and ERDERA scientific coordinator, discusses the success of EJP RD in uniting all stakeholders to accelerate research on rare diseases, and further presents the mission of the newly launched European Rare Diseases Research Alliance (ERDERA) for the coming years.

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